About

My husband, Jeff, was diagnosed with lung cancer in November 2013 at the age of 42. His cancer is the result of a genetic mutation, Jeff is ALK positive. Like many young families managing a lung cancer diagnosis we have found ourselves on a journey unlike anything we could have imagined, let alone planned for. I hope to use this space to share our life experiences (not all of them will be lung cancer-related!) and to help change the stigma surrounding this illness.

Much love and much hope,
Kathy and Jeff

For more on the first 10 months of our lung cancer roller coaster ride, please visit: http://www.caringbridge.org/visit/clarkguinness

5 thoughts on “About

  1. Robin

    HI – I just wanted to thank you for your posts. I love your “Why Lung Cancer Sucks” list. My story could be yours. My husband Jeff was diagnosed out of the blue with Stage 4 NSLC. He is now on Xalkori and back to work – we appreciate every day and every memory we can make for our 9 year old son. One day at a time, with boxing gloves on…. Robin

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  2. Paige

    Dear Kathy and Jeff,

    I am reaching out on behalf AbbVie and the VESTA Study, which is currently recruiting patients with advanced or metastatic squamous non-small cell lung cancer (NSCLC).

    We want to spread the word for this research study and NSCLC. We hope that you’ll consider creating a blog post that directs your readers to VESTAStudy.com or post a message on Facebook and/or Twitter to spread awareness of NSCLC and encourage those with the disease to see if they might qualify to participate in the study.

    We’ve included sample social media posts below that you can share with your social networks if you choose to do so. You are more than welcome to create your own unique post, but we ask that you try to focus on the facts we’ve provided and be careful that you do not indicate that the VESTA study is safe or effective or that participation will include benefits like “new treatments” or “free healthcare.”

    We’ve included sample social media posts below that you can share with your social networks if you choose to do so. More information about the VESTA Study is also included below.

    Spread the word by donating your social status:

    Do you know someone with non-small cell lung cancer? Tell them about the research study, VESTA Study: VESTAstudy.com/YoungLungs

    I just heard about a new research study for non-small cell lung cancer. Check it out: : VESTAstudy.com/YoungLungs

    Share this status if you know someone affected by lung cancer. The research study called the VESTA Study, is enrolling now: VESTAstudy.com/YoungLungs

    The #VESTAStudy is a research study enrolling patients with advanced (metastatic) squamous non-small cell lung cancer: VESTAstudy.com/YoungLungs

    More about the VESTA Study

    Men and women aged 18 years or older who have been diagnosed with advanced or metastatic squamous non-small cell lung cancer, and have not yet received any form of treatment, are invited to see if they may qualify for the VESTA Study. The purpose of this medical research study is to evaluate the safety and effectiveness of the investigational medication veliparib (a PARP-inhibitor) in combination with carboplatin (a chemotherapy drug) and paclitaxel (a chemotherapy drug).

    Veliparib is an investigational drug that has not been approved by the FDA. Therefore, efficacy and safety have not been established.

    Each individual will be evaluated to determine his or her eligibility. Those who qualify will receive chemotherapy in combination with either the investigational medication veliparib or placebo, study-related medical exams, and lab tests at no charge. Compensation for time and travel may also be available.

    You can also visit VESTAStudy.com to learn more.

    Thank you in advance for your support, and if you have any questions at all, feel free to contact me at pmeckler@gopraxis.com

    Best,
    Paige Meckler

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  3. Paige

    Hi –

    I’m following up on the message I sent you last week on behalf of AbbVie and the VESTA Study, which is currently recruiting patients with advanced or metastatic squamous non-small cell lung cancer (NSCLC). We want to provide patients with information about this study opportunity as well as spread the word for lung cancer.

    I hope you will consider sharing this information with your audience. Shareable infographics can be downloaded here. If you have any questions at all, feel free to contact me at pmeckler@gopraxis.com.

    Thanks!
    Paige

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